Patient Advocacy

Tools, advice, and encouragement to help patients speak up, understand their rights, and take control of their care journey.

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    The Unspoken Option: Why Are Cool Caps Still a Secret in U.S. Cancer Care?

    Scalp cooling, also known as “cool caps,” is a proven method that can help chemotherapy patients reduce hair loss and preserve dignity during treatment. Yet in the U.S., this option remains largely unspoken, rarely offered, inconsistently covered, and often discovered only after treatment begins. Dr. Yvette Colón explores the science, the barriers, and why every patient deserves to know this choice exists.

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    My Pancreatic Cancer Survivor Story: Finding Strength When Doctors Lose Hope

    When I was diagnosed with pancreatic cancer, I knew the science the prognosis, the treatment options, the odds. What I didn’t know was how it would feel to be met with silence instead of compassion.

    In this story, I share what it’s like to face a devastating diagnosis as both a clinician and a patient and what it taught me about empathy, advocacy, and hope.

    You Know It’s Bad: Finding Strength When the Doctors Don’t Give You Hope is about reclaiming your power when the system forgets your humanity. Because even when the words you need never come, you can still create your own hope.

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    Pancreatic Cancer Diagnosis: Key Terms Explained

    When I was first diagnosed with pancreatic cancer, the appointments came fast like a conveyor belt I couldn’t step off. Between scans, bloodwork, and learning an entirely new language of medical terms, it felt impossible to keep up. In this post, I’m breaking down those confusing terms like Whipple, FOLFIRINOX, and CA 19-9 into plain language. Whether you’re newly diagnosed or supporting someone who is, I hope this helps ease a little of the fear and confusion that come with hearing, “You have pancreatic cancer.”

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    Why Pancreatic Cancer Awareness Month Matters

    Pancreatic cancer is often called a silent killer, with vague symptoms and one of the lowest survival rates of all cancers. Every November, Pancreatic Cancer Awareness Month shines a light on this overlooked disease, pushing for research, equity in care, and earlier detection while honoring patients, survivors, and families.

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    What I Shared at the Toastmasters Meeting

    Dr. Yvette Colón challenges the “hero survivor” myth in her Toastmasters speech, sharing a more honest, inclusive view of cancer survivorship.

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    5 Things I Learned After My Pancreatic Cancer Diagnosis

    A candid look at the emotional and practical lessons I had to learn quickly after hearing the words no one ever expects: “You have pancreatic cancer.”

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    Why Health Equity Is More Than Just a Buzzword

    Dr. Yvette Colón explains what health equity is, how it differs from health disparities, and why systemic racism in healthcare demands urgent change.

  • Patient Self-Advocacy: How to Speak Up at the Doctor’s Office

    Speaking up in the exam room isn’t easy, especially when you’re exhausted or scared. Here’s how to advocate for yourself effectively and respectfully.